About
A lived experience of dementia group of people from across British Columbia were part of a CIHR-funded participatory action research study that began in 2019. They worked together as an Action Group with a research team (co-led by Mann, O’Connor, & Phinney) and developed a multimedia toolkit (flippingstigma.com) that has been used to raise awareness and reduce the stigma and discrimination surrounding dementia. As the project was drawing to a close, members of the group reflected that it had been a powerful and meaningful experience for them individually and collectively, and everyone agreed that they wanted others to know about “what made the group tick”, and how they too could meaningfully engage in their own community.
In this presentation, co-PIs Alison Phinney and Jim Mann will introduce the reflexive work done by the Action Group in the final year of the project, showing how the group used their experience developing the Flipping Stigma toolkit to create a guide that would “provide direction for future research projects and collaborations, where people with dementia serve as co-researchers and partners for change”. They will lead a discussion to critically evaluate its potential as an approach for increasing the meaningful and active inclusion of “partners for change” - people with dementia and others - in community-based research.
Alison Phinney, RN, PhD is a Professor in the UBC School of Nursing and Co-Director of the Centre for Research on Personhood in Dementia.
Jim Mann, LL.D. is a marketing and communications professional, internationally known for his advocacy and research leadership as a person living with dementia.
Date & Time